My husband and I were in complete shock (we still are). We couldn’t believe it. I cried. I had no idea what was happening and it was happening all so fast. Our life was just completely turned upside down. We didn’t have a clue what this meant. We met with the doctor and were told the twins were conjoined but they didn’t appear to share any organs. He told us we would be seeing lots of doctors and might have to go to the Children’s Hospital of Philadelphia. I was far from prepared for this. I had no idea how rare conjoined twins were, what conjoined twins meant or what the process of separation meant.
I went to my first high risk doctor three days later. He did an ultrasound and then met with my husband and my mother and I. He was everything but positive. He said he didn’t think they could be separated and that most likely they wouldn’t make it. He didn’t give us much hope. He encouraged us to terminate the pregnancy. We left there all in tears. I could feel the babies move and it killed me inside. I knew then I couldn’t give up on them.
After leaving I said I wanted a second opinion at the Children’s Hospital. I wasn’t about to give up. My husband and I named our girls that night. We named them Amelia Lee and Allison June. We were able to get an appointment for the Children’s Hospital November 30th. Those two weeks were the longest. They were full of questions and concerns, tears and happiness. We went through a roller coaster.
Finally the 30th came. My parents and my husband went with me. We went the day before driving five hours. I had a full day of tests. They did an echo on the girls to see how their hearts functioned, a fetal MRI, and a three-hour ultrasound. By the time I met with the doctors I was exhausted.
The OB assigned to me was the nicest man I have ever met. He was so positive and said he has dealt with many conjoined twins from around the world but ours have the best case scenario. All the doctors gave us reality but also gave us a new light of hope. We had two girls who had completely separate hearts, heart sacs, organs and were growing just like normal babies. The only thing they have is a bridge connecting livers but they said they each have a great deal of their own liver.
I am now 25 weeks pregnant. The plan is to deliver the girls at 34 weeks in Philadelphia, PA. I will travel five hours to the hospital and live two to four weeks there before delivering the babies by csection. The girls get checked every two weeks and so far they are growing perfectly. The girls weighted in at 1 lb 8 oz each at their 24 week appointment, December 16th.
We have a long road ahead of us. However we are so happy and have a slight sigh of relief with the news we received. I made this site to keep friends and family up to date on our situation and the girls’ progress. Each day is a new stepping stone. We ask you to please keep us in your thoughts and prayers since the next year will be a long roller coaster year.
We could not possibly thank everyone who has prayed for us this far. You all have a special place in our hearts. We are so grateful for a supportive loving community.
Shellie and Greg Tucker